Story Time: The Humira Ordeal

 

So if you know me personally or just read here, you know I suffer from Crohn’s Disease, as does my sister, mom, and both her brothers. My sister’s disease got out of control and she was put on Humira. Took her shots like a boss (you have to administer them yourself). And she’s been doing really well with them ever since.

My disease followed suit and got worse, I switched to her doctor, had a bunch of tests done and a colonoscopy, and he found ulcers (which are new for me) and one of my tests came back reporting that I was at an 85% risk for disease related complications that will only get worse in the coming years. SO, he prescribed me Humira.

Reading on this medication, it is prescribed for different things I am also dealing with as a result of my Crohn’s Disease which is pretty awesome because it’s sounding like once I start my treatment, a lot of different things will get better. I was really excited about this seeing how well my sister was doing, and couldn’t hardly wait to receive it.

I waited about a month for the authorization to go through and to set up a delivery time with Express Scripts. (I use a delivery service for my medication- super neat, by the way, definitely check it out if you use the same medication on a regular basis! – BC, asthma, allergy, etc!) It finally came yesterday and I did some things first, made dinner, took a shower, and then was finally ready to sit down with these. I had to do FOUR – I had to mentally prepare myself.

Before I get into my story, keep in mind –  I couldn’t go to the doctor and get a shot without crying until I was 15 or 16. Since being diagnosed and getting pricked endlessly – I’ve grown accustomed to needles, I have tattoos, and I get my blood drawn regularly. No big deal, right?

lol.

So, we all kind of knew I wouldn’t be able to do this myself. I had planned on Kyle doing it for me. The injections come sort of like an epi pen, so you hold it to your skin, press the button, the needle goes in and the medicine shoots into you. Way different for me, I have never had anything administered this way before, and I was super nervous! Every time Kyle would go to do it he’d say, “are you ready?” and I would say, “YOU CAN’T ASK ME THAT, I WILL NEVER BE READY.” And then I would proceed to get nervous all over again and we’d have to wait another 20 minutes to work back up to trying again. I tried doing it myself but couldn’t ever bring myself to actually press the button. It took about an hour and 15 minutes to do the first shot. I just held it and stared at it for an entire hour.

About an hour in, my sister called to ask about how it was going, be encouraging, and talk to me about it since she does it all the time. 10 minutes later my mom called to yell at me for being a baby, to put my big girl panties on, and do it for my health. I was on the phone with my mom AND sister, with Kyle doing the shot. He squeezed the skin on the top of my thigh and I layed back so I didn’t have to look.

*POP*

“AHHHHHHHH SHIT SHIT SHIT SHIT FRICKEN FRACKEN EF SHIT BALLS. OW OW OW OW OK GET IT OUT TAKE IT OUT OUT OUT OUT IT’S DONE!”

It burned SO much going in! It was so painful, and I cried. I limped around with an ice pack for a few minutes, the pain went away almost immediately but I was being such a whiny baby about the whole thing. It was an ORDEAL. It took another 20 minutes to do the second shot and my mom stayed on the phone until it was done.

*POP*

“OW OW OW OW OW OW OW OW OW OW OW OW OW OW OW OW OW –  ok. That wasn’t as bad.”

2 down.

I went to edit some pictures from an engagement shoot my mom and I did last weekend and get them e-mailed before trying to do the next 2. When I was finished, I called Kyle in to help and this time they went into my lower stomach, which my sister said was less painful, so I wasn’t AS nervous. I sterilized my spot and laid back –

*POP*

“OK GO DO IT DO IT WHAT ARE YOU DOING DO IT OK DO IT OW OW OW OW OW OW OW- ok. band-aid me.”

Then I grabbed for the next shot because I was not about to wait at this point – I wanted it done ASAP. I popped the caps off, handed it to him and again –

*POP*

“GO GO GO GO GO GO GO GO DO IT DO IT! OKAY ICE PACK!!!!”

I had 4 band-aids, 160mg of medication in me, and I went to sleep.

In 15 days I will do 2 more. And then every other week I will do 1.

I am such a baby.

 

 

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